PatientsLikeMe
PatientsLikeMe
PatientsLikeMe (/ˈpeɪʃənts laɪk mi:/) is an online service that allows patients to connect with others who have the same disease or condition and track and share their own experiences. The company was founded in 2004 by three MIT engineers: brothers Ben and Jamie, and their friend Jeff. The name "PatientsLikeMe" is derived from the founders' desire to create a community for patients, by patients.
History
PatientsLikeMe was inspired by the Heywood brothers' experiences with their brother Stephen, who was diagnosed with ALS in 1998. They wanted to create a platform where patients could share their experiences and learn from others going through the same journey. The site was launched in 2006 and has since grown to include communities for more than 2,500 conditions.
Function
PatientsLikeMe allows users to create a health profile, track their symptoms and treatments, and share their experiences with others. The site also provides tools for users to track their health over time and to contribute to research by sharing their data. The platform is designed to help patients make more informed decisions about their health and to provide researchers with real-world, patient-reported data.
Impact
PatientsLikeMe has been recognized for its innovative approach to patient care and research. The platform has been used in numerous research studies and has contributed to advancements in various fields of medicine. It has also been praised for its role in empowering patients and promoting patient-centered care.
Related Terms
- Health 2.0: A movement that promotes the use of technology to improve health care and make it more patient-centered.
- Patient empowerment: The process of giving patients the knowledge, skills, and confidence to take control of their own health and health care.
- Patient-reported outcome: A measure of a patient's health status or treatment experience that comes directly from the patient, without interpretation by a clinician or anyone else.
External links
- Medical encyclopedia article on PatientsLikeMe
- Wikipedia's article - PatientsLikeMe
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