Genetic exceptionalism
Genetic exceptionalism refers to the belief that genetic information is significantly different from other types of medical information and thus warrants special treatment or protection in policies or law. This concept has been a topic of debate in the fields of bioethics, genetics, and health law.
Overview
Genetic exceptionalism is based on the idea that genetic information is unique and should be treated differently from other types of health information. This belief is rooted in the fact that genetic information can reveal a lot about an individual, including their susceptibility to certain diseases, their family history, and even their ancestry.
However, critics of genetic exceptionalism argue that all health information is sensitive and potentially revealing, and thus all should be equally protected. They also point out that genetic information is not always predictive or deterministic, and thus should not be given undue weight in health decisions or policies.
Implications
The belief in genetic exceptionalism has significant implications for health policy and law. For example, it has influenced the creation of laws and policies that provide special protections for genetic information, such as the Genetic Information Nondiscrimination Act (GINA) in the United States.
However, these special protections can also create challenges. For example, they can lead to the stigmatization of individuals with certain genetic conditions or traits. They can also create barriers to the use of genetic information in research and healthcare.
See also
- Genetic privacy
- Genetic discrimination
- Genetic Information Nondiscrimination Act
- Bioethics
- Health law
References
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Contributors: Prab R. Tumpati, MD