Biobank ethics
Biobank Ethics
Biobank Ethics (pronunciation: /ˈbaɪoʊˌbæŋk ˈɛθɪks/) refers to the moral principles and considerations that guide the collection, storage, and use of biological samples in a Biobank.
Etymology
The term "Biobank Ethics" is a combination of the words "Biobank" and "Ethics". "Biobank" is derived from the Greek word "bios" meaning life and the English word "bank". "Ethics" originates from the Greek word "ethikos" meaning moral or showing moral character.
Definition
Biobank Ethics encompasses a range of ethical issues, including informed consent, privacy and confidentiality, return of results, and the use of samples for research purposes. It also involves considerations about the governance of biobanks, the rights of donors, and the equitable distribution of benefits arising from biobank research.
Related Terms
- Informed Consent: The process by which a participant voluntarily confirms his or her willingness to participate in a particular research, after having been informed of all aspects of the research that are relevant to the decision to participate.
- Privacy: The right of an individual to keep their personal matters and relationships secret.
- Confidentiality: The ethical principle or legal right that a physician or other health professional will hold secret all information relating to a patient, unless the patient gives consent permitting disclosure.
- Return of Results: The communication of individual research results to a participant in a research study.
- Governance: The processes, structures and organizational traditions that determine how power is exercised, how stakeholders have their say, how decisions are taken and how decision-makers are held to account.
- Donor Rights: The rights that a donor has in relation to their donated biological material and any data derived from it.
- Equitable Distribution: The fair and just allocation of resources or benefits.
External links
- Medical encyclopedia article on Biobank ethics
- Wikipedia's article - Biobank ethics
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