Myotonic Dystrophy Foundation
Myotonic Dystrophy Foundation is a non-profit organization dedicated to advancing research, providing support, and disseminating information about Myotonic Dystrophy, a form of Muscular Dystrophy.
History
The Myotonic Dystrophy Foundation was established to address the lack of resources and information available to those affected by Myotonic Dystrophy. The foundation has since grown to become a leading source of support and information for patients, families, and healthcare providers.
Mission
The mission of the Myotonic Dystrophy Foundation is to enhance the lives of people living with Myotonic Dystrophy and their families through education, advocacy, and research. The foundation aims to increase awareness of the disease, promote research to find a cure, and provide resources and support to those affected.
Programs and Services
The Myotonic Dystrophy Foundation offers a variety of programs and services to support individuals and families affected by Myotonic Dystrophy. These include:
- Research Grants: The foundation provides funding for research projects aimed at understanding the disease and developing treatments and a cure.
- Patient and Family Support: The foundation offers resources and support to individuals and families affected by Myotonic Dystrophy, including educational materials, support groups, and a helpline.
- Education and Advocacy: The foundation works to raise awareness of Myotonic Dystrophy and advocate for policies that benefit those affected by the disease.
Impact
Through its programs and services, the Myotonic Dystrophy Foundation has made significant contributions to the understanding and treatment of Myotonic Dystrophy. The foundation's research grants have led to important discoveries about the disease, and its patient and family support services have provided much-needed resources and support to those affected.
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Contributors: Prab R. Tumpati, MD
