Jess Thom
Jess Thom is a prominent figure in the disability rights movement, known for her work as an artist, writer, and activist. She is the co-founder of Touretteshero, an organization aimed at celebrating the creativity and humor of people with Tourette Syndrome. Thom's advocacy work has significantly contributed to changing perceptions of Tourette Syndrome and disability in general, making her a key figure in the disability arts community.
Early Life and Education
Jess Thom was born in London, England. From an early age, she exhibited symptoms of Tourette Syndrome, a condition characterized by involuntary sounds and movements known as tics. Despite the challenges posed by her condition, Thom pursued higher education, earning a degree in Fine Arts. Her personal experiences with Tourette Syndrome have deeply influenced her career and advocacy work.
Career
Thom's career is marked by her innovative approach to raising awareness about Tourette Syndrome and disability rights. In 2010, she co-founded Touretteshero, a platform that uses art, humor, and education to challenge misconceptions about Tourette Syndrome and to support individuals living with the condition. Through Touretteshero, Thom has organized events, workshops, and performances, including the critically acclaimed "Backstage in Biscuit Land," which has toured internationally.
As an artist, Thom has utilized her experiences with Tourette Syndrome to create unique and engaging works that encourage audiences to reconsider their views on disability and neurodiversity. Her writing has also been influential, with contributions to various publications and platforms discussing the intersection of art, disability, and society.
Advocacy and Impact
Jess Thom's advocacy extends beyond her work with Touretteshero. She is a vocal advocate for the social model of disability, which argues that disability is caused by the way society is organized, rather than by a person's impairment or difference. Thom has spoken at numerous conferences and events, sharing her insights on disability rights, accessibility, and inclusion.
Her efforts have not only raised awareness about Tourette Syndrome but have also contributed to a broader understanding and acceptance of disability. Thom's work emphasizes the importance of creating inclusive environments that celebrate diversity and empower individuals with disabilities.
Recognition
Jess Thom's contributions to the arts and disability advocacy have been recognized with various awards and accolades. Her innovative approach to activism and her commitment to challenging societal norms have made her a respected figure in both the disability and arts communities.
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Contributors: Prab R. Tumpati, MD