Irish Haemophilia Society

Irish Haemophilia Society is a non-profit organization dedicated to improving the quality of life for individuals with haemophilia and other related bleeding disorders in Ireland. Established in the early 1960s, the society plays a crucial role in advocating for better healthcare, providing support, and disseminating information to those affected by these conditions and their families.

History

The Irish Haemophilia Society was founded to address the specific needs of the haemophilia community in Ireland. Over the years, it has been instrumental in advocating for improved treatment options and access to care. The society has also been at the forefront of raising awareness about haemophilia and related disorders, both within the medical community and the general public.

Objectives

The primary objectives of the Irish Haemophilia Society include:

• Advocating for the rights and needs of people with haemophilia and other bleeding disorders.
• Providing support and information to individuals and families affected by these conditions.
• Promoting research into haemophilia and related disorders.
• Working with healthcare professionals and institutions to improve treatment and care standards.

Activities

The society organizes a range of activities to support its objectives, including:

• Educational seminars and workshops for patients and healthcare providers.
• Support groups and counseling services for individuals and families.
• Advocacy campaigns to influence health policy and improve access to treatments.
• Collaboration with international organizations to share knowledge and best practices.

Challenges and Achievements

One of the significant challenges faced by the Irish Haemophilia Society has been ensuring access to the latest and most effective treatments for haemophilia, such as recombinant clotting factors, which are crucial for managing the condition. The society has successfully lobbied for government support to make these treatments available in Ireland.

Another notable achievement is the society's role in addressing the contaminated blood scandal, where individuals with haemophilia were infected with HIV and Hepatitis C through contaminated blood products in the 1980s and 1990s. The society has been a key advocate for the affected individuals, seeking justice and compensation for them.

Membership

Membership in the Irish Haemophilia Society is open to individuals with haemophilia and other bleeding disorders, their families, healthcare professionals, and anyone interested in supporting the cause. Members receive regular updates on the latest research, treatment options, and society activities.

See Also

• Haemophilia
• Bleeding disorders
• Healthcare in Ireland

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