Epilepsy Action
Epilepsy Action is a UK-based charity that provides support and resources for individuals living with epilepsy. The organization was established in 1950 and has since been dedicated to improving the lives of those affected by epilepsy through education, advocacy, and support services.
History
Epilepsy Action was founded in 1950 as the British Epilepsy Association. The organization was created by a group of individuals who recognized the need for a national body to provide support and resources for people living with epilepsy. Over the years, the organization has grown and evolved, changing its name to Epilepsy Action in 2002 to better reflect its mission and activities.
Mission and Activities
The mission of Epilepsy Action is to improve the lives of everyone affected by epilepsy. The organization achieves this through a variety of activities, including providing information and advice, supporting epilepsy research, and advocating for the rights of people with epilepsy.
Epilepsy Action provides a range of services to support individuals with epilepsy and their families. These include a national helpline, a comprehensive website with information on all aspects of living with epilepsy, and a network of local support groups. The organization also offers training for professionals who work with people with epilepsy, such as teachers and healthcare workers.
In addition to its support services, Epilepsy Action advocates for the rights of people with epilepsy. The organization campaigns on a range of issues, from access to treatments and services to discrimination in the workplace. It also works to raise awareness of epilepsy and to challenge the stigma and misconceptions that often surround the condition.
Research
Epilepsy Action is committed to supporting research into epilepsy. The organization funds a range of research projects, from basic scientific research to studies aimed at improving the care and treatment of people with epilepsy. It also works to ensure that the voices of people with epilepsy are heard in the research process, for example by involving them in the design and conduct of research studies.
See Also
References
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Contributors: Prab R. Tumpati, MD