Claire Wineland
Claire Wineland (April 10, 1997 – September 2, 2018) was an American activist, author, speaker, and social media personality, known for her inspirational talks and social media posts about living with cystic fibrosis. Wineland was diagnosed with cystic fibrosis, a genetic disorder that affects the lungs and digestive system, at birth. Despite her diagnosis, she became an advocate for those living with the disease, sharing her journey and the importance of living a life not defined by illness.
Early Life
Claire Wineland was born on April 10, 1997, in Austin, Texas. She was diagnosed with cystic fibrosis at birth, a condition that would significantly influence her life's work and advocacy. From a young age, Wineland faced numerous health challenges, including frequent hospitalizations and a reliance on medical treatments to manage her condition.
Career
Wineland's public speaking career began in her early teens, using her experiences with cystic fibrosis to inspire others. She founded Claire's Place Foundation, a non-profit organization dedicated to providing support to children and families affected by cystic fibrosis. Through her foundation and public appearances, Wineland worked tirelessly to raise awareness about cystic fibrosis and the importance of organ donation.
In addition to her advocacy work, Wineland was an accomplished author and social media influencer. She shared her life and insights on living with a chronic illness through various platforms, reaching a wide audience and inspiring many with her positivity and resilience.
Death and Legacy
Claire Wineland passed away on September 2, 2018, at the age of 21, a week after receiving a lung transplant. Her death was a profound loss to the cystic fibrosis community and all who were inspired by her message of hope and living a purposeful life despite chronic illness.
Wineland's legacy continues through the work of Claire's Place Foundation and the countless lives she touched. Her story remains a powerful reminder of the impact one individual can have on the world, advocating for a better understanding of cystic fibrosis and inspiring others to live fully, regardless of their circumstances.
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Contributors: Prab R. Tumpati, MD