Band of Parents
Overview
The Band of Parents is a non-profit organization dedicated to supporting families affected by neuroblastoma, a rare form of childhood cancer. The organization was founded by a group of parents whose children were undergoing treatment for neuroblastoma, with the aim of funding research and providing resources to improve treatment options and outcomes.
History
The Band of Parents was established in 2007 by a collective of parents who were seeking better treatment options for their children diagnosed with neuroblastoma. Frustrated by the lack of effective treatments and the limited research funding available, these parents united to form an organization that could advocate for and fund new research initiatives.
Mission
The mission of the Band of Parents is to fund innovative research and clinical trials that aim to improve the survival rates and quality of life for children diagnosed with neuroblastoma. The organization also seeks to provide support and resources to families navigating the challenges of a neuroblastoma diagnosis.
Activities
The Band of Parents engages in various activities to fulfill its mission, including:
- Fundraising Events: The organization hosts numerous fundraising events throughout the year, such as galas, charity runs, and auctions, to raise money for research and support services.
- Research Funding: Funds raised by the Band of Parents are directed towards cutting-edge research projects and clinical trials focused on neuroblastoma.
- Family Support: The organization provides resources and support to families affected by neuroblastoma, including information on treatment options and connections to other families facing similar challenges.
Impact
Since its inception, the Band of Parents has contributed significantly to advancements in neuroblastoma research. The organization has funded numerous research projects that have led to new treatment protocols and improved survival rates for children with this aggressive cancer.
Partnerships
The Band of Parents collaborates with various research institutions, hospitals, and other non-profit organizations to maximize its impact. These partnerships enable the organization to support a wide range of research initiatives and provide comprehensive support to families.
See Also
External Links
- [Official website of Band of Parents](https://www.bandofparents.org)
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Contributors: Prab R. Tumpati, MD