B Positive Choir
B Positive Choir is a British choir that was formed in 2017. The group is composed of individuals who are living with sickle cell disease, their families, friends, and supporters. The choir was created in partnership with the NHS Blood and Transplant organization to raise awareness about sickle cell disease and to encourage more people, especially those from the black community, to donate blood. Sickle cell disease is a group of inherited red blood cell disorders that affects hemoglobin, the molecule in red blood cells that delivers oxygen to cells throughout the body. People with this disease have atypical hemoglobin molecules called hemoglobin S, which can distort red blood cells into a sickle, or crescent, shape.
Background
Sickle cell disease is particularly prevalent among those of African or Caribbean descent. In the UK, it is estimated that over 15,000 people are living with the condition. Despite its prevalence, there remains a significant lack of awareness and understanding about the disease and its impact on individuals and families. The B Positive Choir aims to fill this gap through their music and public appearances.
Formation and Purpose
The B Positive Choir was formed with the dual purpose of raising awareness about sickle cell disease and promoting blood donation. The choir's name, "B Positive," is a play on words, representing both a blood type that is particularly prevalent in the African and Caribbean communities and a message of optimism and positivity.
Appearances and Impact
The choir gained national attention when they appeared on the popular television show, Britain's Got Talent, in 2018. Their performances were not only moving and inspirational but also served as a powerful platform to convey their message to a wider audience. Through their music, the B Positive Choir has been able to educate the public about sickle cell disease and the importance of blood donation, particularly from donors of African and Caribbean heritage, who are more likely to have the rare blood types needed by people with sickle cell disease.
Legacy and Continuing Efforts
The B Positive Choir continues to perform at various events and venues, spreading their message of hope, resilience, and the importance of community support in battling sickle cell disease. Their efforts have contributed to an increase in awareness and blood donations, making a tangible difference in the lives of those affected by the condition.
The choir's work goes beyond just performances; they are advocates for those living with sickle cell disease, pushing for better healthcare services, support, and research into the condition. Their story is one of triumph over adversity, and they continue to inspire and mobilize communities to support blood donation and improve the lives of those living with sickle cell disease.
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Contributors: Prab R. Tumpati, MD