Genetic Alliance UK
Genetic Alliance UK
Genetic Alliance UK (Template:IPA-en) is a national charity of over 200 patient organisations supporting all those affected by genetic conditions in the United Kingdom.
Etymology
The term "Genetic Alliance UK" is derived from the organization's focus on genetic conditions and its location in the United Kingdom.
History
Genetic Alliance UK was established in 1989 under the name 'Confederation of British Industry for Genetic Disorders' (CBI). It was later renamed to 'Genetic Interest Group' (GIG) before finally becoming Genetic Alliance UK in 2010.
Mission
The mission of Genetic Alliance UK is to promote awareness and understanding of genetic conditions and improve the quality of services and support for patients and their families.
Activities
Genetic Alliance UK conducts a wide range of activities, including:
- Advocacy: Genetic Alliance UK advocates for the rights of people with genetic conditions and their families. This includes lobbying for changes in policy and legislation, and promoting the interests of its member organisations.
- Information and support: Genetic Alliance UK provides information and support to individuals and families affected by genetic conditions. This includes producing information resources, running support groups, and providing advice and guidance.
- Research: Genetic Alliance UK conducts and supports research into genetic conditions. This includes funding research projects, collaborating with researchers and healthcare professionals, and promoting the involvement of patients and families in research.
Related Terms
- Genetic condition: A disease or disorder that is inherited genetically.
- Patient advocacy: An area of specialization in health care concerned with advocacy for patients, survivors, and caregivers.
- Healthcare policy: The plans, decisions, and actions that are undertaken to achieve specific healthcare goals within a society.
- Medical research: The study of health and disease in people. It is the first step in a chain of research that’s done to find out how we can prevent and treat different diseases.
External links
- Medical encyclopedia article on Genetic Alliance UK
- Wikipedia's article - Genetic Alliance UK
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