Denys-Drash syndrome

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Denys-Drash Syndrome

Denys-Drash syndrome (pronunciation: den-ees drash sin-drome) is a rare genetic disorder characterized by kidney disease, abnormalities of the genitalia, and the development of a specific form of cancer known as Wilms' tumor.

Etymology

The syndrome is named after the two doctors, Dr. Claude Denys and Dr. Peter Drash, who first described the condition in the medical literature in 1967.

Symptoms

The symptoms of Denys-Drash syndrome can vary but often include nephrotic syndrome, which is characterized by proteinuria, hypoalbuminemia, and edema. Other symptoms can include ambiguous genitalia or intersex conditions, and an increased risk of developing Wilms' tumor.

Causes

Denys-Drash syndrome is caused by mutations in the WT1 gene, which provides instructions for making a protein that is necessary for the development of the kidneys and genitals.

Diagnosis

Diagnosis of Denys-Drash syndrome is based on the presence of characteristic symptoms, a detailed patient history, a thorough clinical evaluation, and a variety of specialized tests, including genetic testing to detect mutations in the WT1 gene.

Treatment

Treatment of Denys-Drash syndrome is directed toward the specific symptoms that are apparent in each individual. This may include medications to manage nephrotic syndrome, surgery to remove Wilms' tumor, and potentially, kidney transplantation.

Related Terms

See Also

External links

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